Liberty's
Story:
The below interview is taken
exactly as Liberty responded to the below questions.
To help Liberty please click here.
An
Interview With Liberty
How does your disease impact your daily life?
It makes me stand out. In a bad way. People make fun of me because
of my big belly, and because I’m short. I have to take too many
medications so it’s hard to keep up with the class and class
work. It separates me from other people. I feel as if I don’t
belong where I am today. I always have to watch my sugar intake.
All in all I just don’t feel normal,
What are your feelings about
what is going on?
I’m not sure how I feel about this right now. I sort of have
mixed emotions. I am happy because I will be able to eat sugar
and grow and a have a smaller belly. I am scared about it because
I could die and I won’t be like my sister any more (we’ve been
through every thing together). I am mad about it because I will
be out of school a long time and I wont be able to do certain
things any more like ride roller coasters. I have a bunch of
mixed emotions.
What do you like to do with
your friends?
I like to hang out , watch movies, play on the trampoline, biking,
skating, and doing make up and nails .
What are your favorite things
(music, games, animals, etc…..)?
Well my favorite band in music is Skillet which I think is rock.
I also like Good Charlotte, Rancid, and New Found Glory. I don’t
really think I have a favorite game I guess I like some but
none are my favorite like softball and kickball. I have few
favorite animals I cant really pick one there is the golden
lion tameren (a monkey) and a rat (because I've had two as pets)
If you could eat anything, what would
that be?
Sugar wise what my friends and some of my family eat (because
I feel that I am not equal to them in health wise) but right
now Chicken Run’s Hot Wing Chicken Tenders.(my favorite food
mmmmmm yum)
What do you want to be when
you grow up?
I have a few things that I want to be when I grow up I want
to be a chef , a doctor ,a lawyer, or a photographer.
Liberty's
Daily Intake Compared to that of a Child without Glycogen Storage
Disease
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