Liberty's
Story:
The story you are about to read
are words directly from Liberty's mother. To help Liberty please
click here.
Family
Impact
Within the year after they were
diagnosed, I had a son who was not affected by GSD. Because
of the care that my two youngest girls needed along with being
a single mother,I made the hardest decision I've made as a parent.
I gave him up for adoption. There was no way I could take care
of a new born and while trying to take care of Kayla and Liberty’s
medical needs and raise my oldest daughter who was already feeling
the loss of time and attention. I decided on an open adoption
so that my children could still be in touch and so my son could
know I had not abandoned him and that I loved him and wanted
him to have a better life.
My oldest daughter Angela has
unfortunately lost a lot of time with me and we have grown apart
more and more each year. I feel that she resents the fact that
her sisters need so much attention and there is a lot of tension
between the girls. She just turned 18 and moved out which is
really sad for all of us.
Living
with Glycogen Storage Disease
Pursuit
of a Transplant to Change & Save a Life
An
Interview with Liberty
Liberty's
Daily Intake Compared to that of a Child without Glycogen Storage
Disease
Help
Liberty
Photo
Gallery of Liberty
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